We're very grateful. We're very thankful for all of your love and support of our family as we bravely take on Hunter Syndrome. There isn't adequate funding for research. While we have our hands and our hearts full with just fighting this regressive disease, we realized we have to do our part of support research. Only those who really care, who really take a special interest in our children and Hunter Syndrome can make a difference in improving the lives of the adults and children effected by this disease.
Thank you: https://www.youtube.com/watch?v=vyeGfyzYWMI