Two of our 3 sons have Hunter Syndrome, a rare genetic disease, affecting almost exclusively boys. Hunter Syndrome is a progressive disease where a genetic mutation is present that causes their bodies to not produce an enzyme required to purge cellular waste, simply called GAGs.  As a result, their organs, including vital organs like the brain and heart, joints, and bones are effected by this disease.  Slowly these boys lose their ability to talk, walk, and maintain skills they developed as babies and toddlers, leading to an early death.  There is no cure.  Our sons present with both the mild (due to early treatment and diagnosis) and severe cases of Hunter Syndrome after being diagnosed in October of 2010.   Every day we live the ups and downs of this disease. 

What do we need? FDA Approval of our medicine.

Our Mission

Simply, to treat and cure Hunter Syndrome. We started this non-profit for all boys affected by Hunter Syndrome. We don't want to lose our sons to this disease and neither does anyone else.