All we want is the chance to raise them.

To see them live past the first decade of life.



Your donation allows us to progress research into therapies, a cure, and to support gene therapy to save their lives. 

Make a Donation

Donations by mail:

Raising Rare Boys

P.O. Box 332

Avon, OH 44011


Here is our Tax Id: 47-3507795.  You'll receive a confirmation of your donation and a tax receipt by mail.


Spread the Word

Tell your friends and family about Hunter Syndrome, and how everyone can show support for these families and boys. 



Support Alex,our severely affected son, by coloring a page for him! Mail it to us at our P.O. Box or email us your scanned picture! xo

Download Here