Great response to the Long Drive Competition!

Thank you so much to everyone who gave us such generous donations!  We are touched by your support!  100% of every donation is going to fund gene therapy research to move this research to its first human trials! The best part is it's all happening here in Ohio.  The researchers are at Nationwide Children's Hospital.  With your donations, we know you've placed tremendous trust in us and we are committed to helping gene therapy become a reality! We're aligning with other Hunter Syndrome charities and families to make this happen!

The date of the Long Drive Competition will be announced soon!  It's going to happen in the next few weeks! We're watching the weather and the course conditions.  We'll have a live leader board so that you'll be able to follow along with the action!  Shortly we'll announce the date, the final donation tally and which boy will drive the ball on your behalf! We're also gathering some awesome prizes and will have some surprises in store!

Thank you again for your support,

Raising Rare Boys