We are grateful for Senator Rick Scott, R-FL, and Ranking Member, Kirsten Gillibrand, D-NY, for giving Rare Disease this forum. Senator Scott’s opening statement was moving about his brother having a rare hip disease, and no health insurance. He is a rare sibling who sees immense suffering, and the lack of support for his family. Please watch this or download the testimony of these great people who want to move treatments through the FDA faster, and believe that the Senate has provided the flexibility to the FDA to do just that!

From-regulator-to-roadblock-how-fda-bureaucracy-stifles-innovation